Baku, February 28, AZERTAC
Rare Disease Day is an observance held on the last day of February to raise awareness about diseases that most people will not know of, as well as to improve access to treatment, according to Days of the Year.
EURORDIS (The European Organization for Rare Diseases) says that treatment for many rare diseases is insufficient, and some people’s quality of life is greatly hindered by inequality, simply because people have never heard of their disease, or do not understand the disease and the patient’s needs.
Since 2008, EURORDIS has been putting in place social networks to help support individuals with rare diseases and their families, as well as Co-Ordinating events for Rare Disease Day at an international level.
2010 featured balloon releases, marathons, auctions and tree planting events to raise awareness, and each year people affected by rare diseases are encouraged to share pictures and their stories with the world. locations, such as a reception in the British Parliament where policy makers meet with individuals with rare diseases to discuss issues such as equal access and availability of prevention, diagnosis, treatment and rehabilitation.
These events are held to bring attention to policy makers and inspire change in the community. Historical monuments such as the Colosseum and the Empire State building have taken steps in sending messages of solidarity on this day by lighting up with the iconic pink, blue, and green colors, providing hope for millions world-wide.